2008 has arrived at last.
I was waiting for it with some excitement and not a little fear.
Because, one way or the other, it's going to be a big, big year for me.
Sometime in the next 12 months, hopefully in the next three or four, I will have a Bone Marrow Transplant.
If it works, I will have the chance to resume a normal life.
If it doesn't, well, if it doesn't it could mean no change.
Or no life.
Obviously, I've asked a lot of questions about this treatment. It's astonishing, really, that medical science has actually come up with a blunderbus to fight certain cancers. As one of my doctors said; 'We have very few golden bullets."
So they kill all the cells. Good and bad.
And that makes the transplantee very, very sick. It means living in an isolation room for weeks. It means not seeing my little daughter Charlotte for six to eight weeks. That will be one of the hardest parts of all.
It means six to twelve months of not feeling very well.
But it could mean a new life.
I hate hospitals. i don't if it's because I have spent so much time in them or if it's just a kind of phobia.
So deciding to do this hasn't been easy.
But one thing made the decision easy.
Charlotte.
Anything that will allow me to spend more time with her, is worth it.
There is, of course, a problem with finding out as much as you can about something like this.
All of what you discover, isn't good.
There are sad stories, stories about people suffering a great deal. There are tragedies.
But I try as hard as I can to concentrate on the stories of hope and the stories of people given back their lives.
Next week, I see my doc and tell her to start making the arrangements.
Although they harvested healthy bone marrow from me some years ago, they will, in the first instance, see if they can find a donor.
That raises the possibility of Graft versus Host disease which can be bad.
But if it all goes to plan, the results could and should be excellent.
Eight weeks without holding my daughter. Eight weeks without a kiss from her.
And even when I see Connie, she will be wearing a surgical mask.
They tell me'll I'll be too sick to care, which, in a perverse kind of way, is good news I suppose.
I hope to keep up the blog while I undergo the transplant and in the subsequent months.
So if you have a mind which is interested in things medical, this is the place for you.
I'm going to need some courage.
And your prayers please.
Tuesday, January 1, 2008
It's Going To Be Some Year....
Posted by
Paddy's World
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15:01
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Labels: Bone marrow transplant, Charlotte, Connie, Health, hospital
Saturday, October 27, 2007
Paddy Murray Is (a bit) Unwell (this time)
DAMMIT.
Back in hospital.
The cure didn’t cure me.
I have no intention of going into all the gory details (and believe me, they’re gory) but suffice to say that the ghastly infection in my foot is still doing its worst.
It’s damned sore - up around 9 out of 10 (on a male scale. It’s probably only about 4 on a female scale.)
I have been pumped full of so many antibiotics, that I’m pretty sure, 99 per cent of the world’s infections wouldn’t come near me. Wouldn’t dare.
Sadly, I’ve got the macho one per cent, the Rambo of blasted foot infections, the one nasty piece of work that is doing to my foot what Eric Cantona (bless him) once did to a loudmouth fan.
So the little bag has been packed again, the bottles of water have been purchased, the sweets stuffed into my little locker, my toothbrush and razor laid neatly beside me and I’m back in my jim jams, back in a hospital bed and thoroughly miserable.
Well, no. That’s not fair.
I’m miserable. But it’s not thoroughly.
I know that what’s wrong with me is relatively serious. It’s not as bad as, say, leprosy. But it’s a lot worse than a grazed knee.
So while hospital is where I don’t want to be, it’s the right place to be.
I desperately miss Connie and Charlotte. I hate saying goodbye to the little mite (that’s Charlotte, not Connie) even though I haven’t been much fun for her these past few months.
She thinks daddies are people who lie on couches complaining all the time.
If and when I get better, and if prayer makes people better I’m half way there, I am going to play with Charlotte all day every day until I can stand it no longer.
Or until she can stand it no longer.
Today, I was seen by a total of five doctors. Sometimes, it takes five doctors with different specialties to come up with a solution to a difficult problem
And my foot is a difficult problem, a bit like the rest of me.
It’s not been the best three months of my life.
But three years ago, I was in hospital for a long period.
And that ended with me being given the cheerful new that I was no longer editor of the Sunday Tribune because ‘we want someone who’s there all the time, not someone who’s sick.’
Hopefully, i am in more secure employment these days. And anyway, the Sunday World is a better newspaper than the Sunday Tribune. At every level.
And, of course, three years ago, I probably had some daft picture of Eric Cantona or Denis Law or maybe even some place in the South of France as my screensaver and desktop display.
Now, I have Charlotte’s picture.
And even when some days are a bit dark, that’s always there to cheer me up.
Posted by
Paddy's World
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14:35
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Labels: antibiotics, Charlotte, Connie, hospital, illness, infections, pain