The Workplace is Still Tough for the Sick

IT is only right that the world has moved on so that discrimination against people on the basis of their sex, their sexual orientation, their colour, their creed, their nationality or their physical ability, is becoming more and more rare.
It ‘s not gone, of course.
There are plenty of people who treat women badly, who are homophobic, who are racist, who despise religion of any or all sorts, who hate other nationalities, their neighbours in particular and who would never dream of hiring someone who is in a wheelchair or who is deaf or blind.
However…

I am less than convinced that there is not rampant discrimination against the sick.
By ‘sick’ I mean those with chronic illnesses.
I would include those with epilepsy, asthma, diabetes and suchlike.
I would include those with bi-polar disorder or manic depression as we used to call it.
In fact, I would include anyone with a psychiatric illness.
And I would certainly include those who, like me, have cancer.
There is something in the psyche of many people, which tells them that the chronically ill are not worthy of important roles in the workplace.
They are not to be promoted to too high a level.
While my current employers are decent and considerate, I do have experience of losing a senior position in which case one of the reasons given for demotion was “we want someone who’s here all the time, not someone who is sick.”
I was, at the time, in hospital.
But that’s only a small example.
Those who are lucky enough to be more or less constantly in the full of the health, often don’t realise that being chronically ill doesn’t mean being ill all the time. It doesn’t even mean being ill much of the time if you’re lucky and if you have the right treatment.
But there are many, sadly in positions of authority, who look on the chronically ill in the same sad way they look at women.
You see, women can become pregnant. And pregnancy more often than not (I’m glad to say) leads to the birth of a child.
And of course, childbirth has the inevitable result of maternal leave or, in civilised countries, parental leave.
And that’s costly and annoying for bosses. Damned women. Nerve of them. You’d think they’d be more career conscious and give consideration to not having children, something the parents of those who think like that should have done.
Cancer is often a chronic rather than a terminal illness.
Many people suffering from cancer are well for the vast majority of their working lives.
That’s true of most people who have chronic illnesses.
It’s frustrating when you come up against someone too thick to realise that, though a person has a chronic illness, they have a major contribution to make.
If there is to be discrimination in the workplace, let it be against those bozos.
But may they never suffer from a chronic illness.

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Paddy Murray Is (a bit) Unwell (this time) V

A FEW of the boys are working on a tunnel.
It’s slow work.
They’re using scalpels and hiding the dirt in their colostomy bags.
But progress is slow.
The plan is for them to emerge somewhere near the Guinness tap in a pub on James’s Street.
And I wish them the best of luck.
Personally, I’m not going to chance it, not because I don’t want to get out of here, believe me, I do.
It’s just that they’ve put me on the one antibiotic that reacts with alcohol. Makes you pretty ill. And when you’re pretty ill, the last thing you want is something that’s going to make you pretty ill. Or pretty iller. Or prettier ill. Whatever. You get my drift.

My defiance of authority came in the form of Singapore Noodles which were sneaked in by a friend on Saturday night, disguised as a bunch of grapes. The noodles, not the friend.
It was wonderful once again to taste something that tasted of something.
I am proposing, when I eventually finish my sentence, to launch a television game show called: Guess the Food.
In it, people will be blindfolded and fed hospital food and asked to guess what it is or, at least, what the hospital says it is.
“It’s beef,” they will cry only to be told it’s actually a pork chop.
“It’s a pork chop,” they will shout confidently, only to be told it’s bacon and cabbage.
“It’s bacon and cabbage,” they will roar to the cheers of their family members, who, like family members always do in such programmes, will be standing around looking like complete idiots.
But it won’t be bacon and cabbage, it will be jelly and ice cream.
I always thought there was at least a degree of overacting in films such as The Bridge Over the River Kwai and Merry Christmas Mr Lawrence.
But now I am beginning to see that incarceration does that to a body. It makes him overact dreadfully.
The boredom is the worst part of it. I don’t know. That could actually be a line from a prisoner of war movie for all I know.
And so I have taken to complaining.
I hate hotel rooms, but I don’t understand why single rooms in hospitals are half the size of single rooms in hotels. It’s the engineering I don’t understand. How do they make them so small? The architect must draw his plans under a microscope or something.
I don’t understand why they wake you up all the time either. Half the time they seem to wake you up to find out if you’re awake or not. And I bet they find that 100 per cent of the people they wake up in the middle of the night are actually awake. And that means they don’t feel guilty about waking you up.
And I hate the rubber covering on the mattress and the pillows. Yes, I know why it’s there. But I can say, honestly, in my case: Not guilty.
Most of all, I hate being without Connie and Charlotte and yes, Eric the mutt too.
Hospitals may repair the bodies of their patients, but they do nothing for their mental well being.
If Mary Harney had the faintest idea what she was doing, she would address the issue of patient welfare as well as patient well-being.
I’m off again.
Which is why one friend has promised to bring in to me, a painting for my wall.
The Moaner Lisa.

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Paddy Murray Is (a bit) Unwell (this time)

DAMMIT.
Back in hospital.
The cure didn’t cure me.
I have no intention of going into all the gory details (and believe me, they’re gory) but suffice to say that the ghastly infection in my foot is still doing its worst.
It’s damned sore - up around 9 out of 10 (on a male scale. It’s probably only about 4 on a female scale.)
I have been pumped full of so many antibiotics, that I’m pretty sure, 99 per cent of the world’s infections wouldn’t come near me. Wouldn’t dare.

Sadly, I’ve got the macho one per cent, the Rambo of blasted foot infections, the one nasty piece of work that is doing to my foot what Eric Cantona (bless him) once did to a loudmouth fan.
So the little bag has been packed again, the bottles of water have been purchased, the sweets stuffed into my little locker, my toothbrush and razor laid neatly beside me and I’m back in my jim jams, back in a hospital bed and thoroughly miserable.
Well, no. That’s not fair.
I’m miserable. But it’s not thoroughly.
I know that what’s wrong with me is relatively serious. It’s not as bad as, say, leprosy. But it’s a lot worse than a grazed knee.
So while hospital is where I don’t want to be, it’s the right place to be.
I desperately miss Connie and Charlotte. I hate saying goodbye to the little mite (that’s Charlotte, not Connie) even though I haven’t been much fun for her these past few months.
She thinks daddies are people who lie on couches complaining all the time.
If and when I get better, and if prayer makes people better I’m half way there, I am going to play with Charlotte all day every day until I can stand it no longer.
Or until she can stand it no longer.
Today, I was seen by a total of five doctors. Sometimes, it takes five doctors with different specialties to come up with a solution to a difficult problem
And my foot is a difficult problem, a bit like the rest of me.
It’s not been the best three months of my life.
But three years ago, I was in hospital for a long period.
And that ended with me being given the cheerful new that I was no longer editor of the Sunday Tribune because ‘we want someone who’s there all the time, not someone who’s sick.’
Hopefully, i am in more secure employment these days. And anyway, the Sunday World is a better newspaper than the Sunday Tribune. At every level.
And, of course, three years ago, I probably had some daft picture of Eric Cantona or Denis Law or maybe even some place in the South of France as my screensaver and desktop display.
Now, I have Charlotte’s picture.
And even when some days are a bit dark, that’s always there to cheer me up.

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Paddy Murray Is (not that) Unwell (he hopes) III

I’d love a pint. I really would. I am, as they say, gumming for one.
It’s always the same when I’m somewhere they don’t have pints.
And they don’t have pints in hospital. Not pints of Guinness, I mean. They do have pints. Of blood.
But it’s not quite the same thing, drinking through your arm.
So I’d love a creamy. A roaster. A pint of plain.
Not right now, not this second.
But I’d love to have one this evening. Or maybe two. Might even stretch to three.

Being ill, or a little bit ill, or not at all ill but with an annoying infection, I firmly believe in the restorative powers of pints. Specifically, pints of Guinness.
For years, you were handed a bottle of Guinness after donating blood in this country.
Women who gave birth were immediately given Guinness every day to build up their strength. Their children were, however, forced to wait years for the same, er, beneficial medicine.
I have no idea why such practices ended.
Economic reasons, no doubt. Some accountant figured out that by stopping the Guinness, they could buy more ledgers or pencil sharpeners or something.
Or maybe, Carlsberg or Heineken got the hump and demanded equal treatment. Silly, that. Lager, though, hasn’t got the same powers as Guinness.
I’m pretty sure that if the lady with the trolley came around today and asked us all if we wanted tea, coffee or Guinness, she would be returning to her kitchen with pots of cold tea and coffee.
I am also pretty sure that, after a couple of trips to the trolley, we patients would all be feeling a great deal better.
And even if hospital food is, well, hospital food, boy, wouldn’t we look forward to it if it was to be accompanied by a nice Merlot or a nice, round Cote de Rhone.
You may very well think I am obsessed with alcohol.
I am not.
I merely miss it.
I don’t miss it as much as I miss my partner or my child or my dog or my house or my bed at home or a decent cup of tea.
But it’s not here. They don’t encourage it in hospitals.
And I miss it.
It’s not that I think about it all the time.
This morning, for example, I was thinking again about what a good my idea to put each sick person into their own sterile pod.
I thought about that again when the lady who brought me my breakfast informed me that she felt ‘absolutely dreadful.’
Brilliant, I thought. She feels sick and she’s walking around a hospital handing out food to people who are trying to get better. Put her in a pod, I thought, and stop her from spreading her sickness.
And today I also thought about England reaching the final of the Rugby World Cup.
I thought, there’s a mediocre, ageing, average team in the world cup final.
Why?
Because they have passion and heart and determination. And they have been well prepared.
And our younger, more skilled and more fancied team dumped out in the qualifying round.
If we’d been properly prepared, we could have won the damned thing.
And then I was looking at the hung-over England fans and the hung-over former England player Matt Dawson on television talking about the joy of the England fans.
The best of luck to them.
There is a perfectly logical reason as to why there should be bars in hospitals.
I’m not talking here about The Dog and Duck or the King’s Arms.
Maybe The Doctor and Nurse or The Cut and Stitch or something.
But it would be strictly for patients only.
And admission would be by coloured wrist band so that certain patients, for whom a drink might be harmful, would be wearing a red wrist band and would not be admitted.
There might be, say, a green wrist band for someone allowed four pints and a blue one for someone allowed three, a yellow one for someone allowed two and a pink, yes, I think pink, for someone allowed one.
And it would only be Guinness.
And maybe some decent red wines.
I mean, the thing is supposed to be medicinal.
Of course, a mini bar in the room would solve the problem too...

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Paddy Murray Is (not that) Unwell (he hopes)

❍Two of the loves of my life, Charlotte and her 'brother' Eric

Back to hospital.
Though I visit St James’s Hospital in Dublin regularly to see my doctors - I think I have five or six at the last count - it’s almost three years since I have spent a night here.
Last time, at least, I was sick.
Hospital’s a grand place to be when you’re sick. In fact, I can’t think of anywhere better. And, when you get right down to it, hospitals were built to look after sick people. So it all makes a perfect kind of sense.
Right now, I am not what you might call sick in the conventional sense.
I feel tremendously well. Any feeling of nausea or being unwell that I feel is a result, still, of Ireland’s lacklustre performance in Rugby World Cup.

Lacklustre? Lack-everything.
Anyway, I’m here in hospital feeling perfectly well from the ankles up.
And therein lies the nub of my problem.
Since I was diagnosed with this damned cutaneous lymphoma about 12 years ago, I have been well from the ankles up bar one period where I was well only from the ankles and wrists up. You will gather that it was my hands and feet that were causing me problems.
And since the last time I was confined to hospital - they don’t actually confine you, they just strongly suggest you stay - my partner has given birth to our wonderful daughter Charlotte. And, up to four months ago, the greatest pleasure in my life was going for a walk around our neighbourhood with Charlotte and the hairy Samoyed we like to described as her ‘brother’ Eric.
Yes, I walked around with a deal of pride. I probably looked smug and maybe, even, arrogant. But certainly proud.
But the feet started acting up. Bastards. If I didn’t need them, they’d be gone long ago. But, like most bodily organs, they have a role to play.
Whether it is to do with being on a clinical trial for a new drug and having stopped my old drug, I can’t say. Even with the old drug which was, generally, excellent for my health bar the fact that it raised my cholesterol so high it almost killed me, my feet were bad.
But they just got worse and worse.
And then the infection set in.
Now, it’s four months since I wore a pair of shoes. Not that I measure happiness by the number of pairs of shoes I get to wear in a given month. Was Imelda Marcos happy, I ask?
Now, I’m in hospital. And I feel well from the ankles up.
Here, the sound that wakes me in the morning is not the baby pressing the buttons on her musical frog, but the nurse telling me I’m about to be fed more antibiotics through a vein in my arm. Funny that, you’d think it would be a vein in my leg, legs normally being nearer to feet than arms.
Confined, so to speak, to a hospital bed and big things happenning elsewhere.
Tomorrow and Sunday, there are two Rugby World Cup Finals.
First up, it’s England and France. I’m cheering for France.
I’d love t o cheer for England. I love the place. I like the English. I admire many of their players.
But, even though I cheer them on at cricket, there’s something....
Maybe it’s “Swing Low...” I don’t know.
And then, on Sunday, I’ll be cheering on Argentina, largely because I think world rugby has given them a raw deal over the years and they have beaten the big boys politically and I’d love to see them winning on the field.
(I know, though, that some would take an Argentina/France final as some kind of vindication of Ireland’s lousy performance. But it would be no such thing.)
For the first time ever, I will be watching Rugby World Cup semi-finals stone-cold sober.
No pints. No wine. Nothing.
I cannot imagine what the experience may be like.
A friend has suggested I will interrupt the game with cries of ‘handball” and “that was a push.”
He said I might even express surprise that the goalkeeper is so far off his line or that someone or other missed a perfect opportunity for a clean header at goal.
Unlikely.
I will, however, miss the expertise that comes with the fourth or fifth pint. I will miss the knowledge of the game and the tactical nous that comes half way through the sixth pint.
But I am, despite what some say, in the care of what I can personally attest, to be one of the finest healthcare systems in the world.
It is a system which would be all the finer if the enormous layer of bureaucracy at its top could be removed or halved.
But on the basis that a decision to halve bureaucracy would be taken by bureaucrats, such a thing is as unlikely as politicians voting to reduce their number or to pay themselves an honest salary.
But let nobody say that once in the door of an Irish hospital, the care is not as good or better than anywhere in the world.
Let nobody say that, despite the problems, the health service is not generous in the way it deals with patients, in that I, and several I have met since my latest incarceration, as being fed drugs unavailable to patients in Britain’s much lauded healthcare system on the grounds of price alone.
So while I will complain - of course I will, I’m a grumpy old man - about being in hospital in the first place.
While I worry that seeing my much loved game of rugby through sober eyes might alter my view of it entirely.
And while I miss my partner Connie, my daughter Charlotte and my dog Eric, madly, I am in a place designed and built for sick people.
Even if they’re only sick from the ankles up.
(At leat, I hope it’s only from the ankels up.)

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